I think sometimes you have to step back from things to see the bigger picture. Last weekend was rough for me. My legs didn't want to walk and my workout was pretty bad. Oh course I had my cheerleaders watching me, but it was discouraging and kind of painful.
It's easy to start to panic that things have progressed to the "next level". Looking at those few days alone, it is pretty scary. But then the next day comes.
We went to see our family Dr. on Wednesday. Now you have to understand that we haven't seen her in awhile. My guess would be 4-6 months since any of us have been in there. You know what the first things she says to me is?? She said I looked so much better and that I looked like I was moving around so much easier. I told her I had been working really hard and she said she could really tell.
Having been with myself every day I didn't notice how much I had changed. I left feeling pretty good about myself. I even noticed that when I was in JJ's class I wasn't as afraid of falling. I have hardly even been using my cane! I guess the extra workouts and trying new things has really helped.
Next month is my annual testing at McMaster and I'm kind of excited. I get so discouraged when the numbers drop, but last year I was able to keep the numbers the same. At first I was discouraged that my hard work hadn't done anything, but I've recently discovered why they were so happy about it. It meant for 1 year I stopped the progression of muscular dystrophy. I should be proud of that! I have lost my ability to do any stairs and so many things are limited now, but I can still cook and clean my house and walk. I can still be a good mom and a good friend. I have a team around me to make things happen, but I have to remember those good things on days like last weekend.
Come to think of it, the weather wasn't good and I had really pushed my body the few days before ... not to mention I also had a bug. No wonder my legs wanted to sleep. My whole body wanted to sleep.
Anyways, thank you Dr. B for the encouragement .... now to figure out how to be as mobile when forced to wear shoes.
